There are many ways to find help when you need it, or if you don't currently have it.
You may need one or more caregivers with you during the CAR T treatment process. It’s especially important to have a full-time caregiver with you for several weeks after your CAR T infusion. Ask your CAR T healthcare team about what caregiving support you'll need.
There are programs that may help with the extra costs that go along with CAR T. Your health insurance may also provide some coverage.
You may want help with a range of things like caring for your family, picking up your mail, and more. You may be away from home for weeks.
You may have ways to cope with feelings on your own. It can also be helpful to ask for support from a professional. You don’t have to go through this experience by yourself.
You can build a circle of support based on your specific needs. Here are some examples:
Ask them what support there is.
Everyone's support system looks different. Remember that no matter what circle you build, you can still get CAR T.
The organizations listed above are independent from Kite and Gilead, and this list is subject to change. This information is provided as a resource for patients and isn’t an endorsement or guarantee of assistance.