Resources
What is CAR T?
![[Tap to play] Thumbnail for a video titled: What is CAR T? An introduction for patients and caregivers.](/-/media/project/letschatcart/letschatcart_com/images/what-is-car-t-video.svg?iar=0&hash=F577BDF2104E62667521A2B4B365A9FC)
Explaining how CAR T works
![[Tap to play] Thumbnail for a video titled: Explaining how CAR T works.](/-/media/project/letschatcart/letschatcart_com/images/explaining-how-car-t-works-video.png?iar=0&hash=AFFA87ABCC5611CEFE5A73B7C124767F)
What's it like to get CAR T?
![[Tap to play] Thumbnail for a video titled: What’s it like to get CAR T-cell therapy?](/-/media/project/letschatcart/letschatcart_com/images/whats-it-like-to-get-car-t-cell-therapy-video.svg?iar=0&hash=C197E8A46D71FBD8A96C5532C66A088C)
Preparing for CAR T
![[Tap to play] Thumbnail for a video titled: Preparing for CAR T: Terry and Cheryl’s Story.](/-/media/project/letschatcart/letschatcart_com/images/preparing-for-car-t-video.svg?iar=0&hash=399E327B0521D37EC6269C46C18F112E)
Patient stories: My CAR T experience
![[Tap to play] Thumbnail for a video titled: Patient stories: My CAR T experience.](/-/media/project/letschatcart/letschatcart_com/images/patient-stories-my-car-t-experience-video.png?iar=0&hash=9AA18484DE06FA18A2DEE5AE2F18C0CA)
Patient stories: After my CAR T infusion
![[Tap to play] Thumbnail for a video titled: Patient stories: After my CAR T infusion.](/-/media/project/letschatcart/letschatcart_com/images/patient-stories-after-my-car-t-infusion-video.png?iar=0&hash=92B4E9ADB629620D800C2184298433CD)
Caregiver stories: My CAR T experience
![[Tap to play] Thumbnail for a video titled: Caregiver stories: My CAR T experience.](/-/media/project/letschatcart/letschatcart_com/images/caregiver-stories-my-car-t-experience-video.png?iar=0&hash=D2F3B159D262EA22C1EE6D9C95323560)
Caregiver stories: Taking care of yourself
![[Tap to play] Thumbnail for a video titled: Caregiver stories: Taking care of yourself.](/-/media/project/letschatcart/letschatcart_com/images/caregiver-stories-taking-care-of-yourself-video.png?iar=0&hash=F524AD52CFCC6F0C2A64BE1BF59DFFC4)
Patient and caregiver stories: How we found support
![[Tap to play] Thumbnail for a video titled: Patient and caregiver stories: How we found support.](/-/media/project/letschatcart/letschatcart_com/images/patient-and-caregiver-stories-how-we-found-support-video.png?h=1080&iar=0&w=1920&hash=E54D6B6849632838C4CD1F68E2C0635B)
Patient stories: My healthcare team
![[Tap to play] Thumbnail for a video titled: Patient stories: My healthcare team.](/-/media/project/letschatcart/letschatcart_com/images/patients-stories-my-healthcare-team-video.png?iar=0&hash=4EE8D8C34F3583B55140EADC003589CB)
Questions
Below you'll find a collection of discussion questions from across the website. You can download or print these for your reference or for conversations with your healthcare team.
You can download or print all of the questions. Or, if you prefer, select questions by topic and then click the download or print buttons at the bottom of the page.
- What are the steps for me to get CAR T?
- How can I prepare or plan for CAR T?
- How many times will I have to go to the CAR T medical center?
- How long will each step take for me?
- Is CAR T right for me?
- Are there clinical trials that we should consider?
- Who can I talk to if I want a second opinion about my treatment options?
- What types of treatment should we consider? Is CAR T an option for me?
- In what order might someone receive different types of treatment and why? How might CAR T fit into my treatment plan?
- If I try another type of treatment first, could that affect whether CAR T is an option later on?
- How well do different types of therapies work?
- What are common side effects and when might they happen?
- What other side effects could I expect and when might they happen?
- How can my caregiver and I watch out for side effects?
- What responsibilities would I have as a CAR T caregiver?
- How might the caregiver role change throughout the CAR T treatment process?
- How much time should I plan to be at or near the CAR T medical center, and when?
- Can I take a break from caregiving while the patient is at the CAR T medical center?
- What support might I need?
- How long will I need a caregiver for?
- How do I get the support I need? Is there someone, like a social worker or nurse coordinator, who can help me find support?
- What types of support can the CAR T medical center or manufacturer provide?
If you want to learn more about CAR T:
- When might CAR T be (or not be) an option for me?
- Have any of your patients received CAR T before? What was their experience like?
- How well does CAR T work?
- How might CAR T fit into my treatment plan? If I try another type of treatment first, could that affect whether CAR T is an option later on?
If you’d like to seriously consider CAR T:
- Is CAR T right for me?
- Can I receive CAR T at this clinic? Why/why not?
- If I’m likely eligible for CAR T and can’t receive it here with you, are you able to refer me to a specialist or a CAR T medical center?
- How can I prepare or plan for CAR T?
- What support might I need? Who can I talk to about finding support?
- How do CAR T side effects compare to other treatments?
To prepare for the consultation:
- What documents or medical records do you need? Do I need to provide them or will my oncologist's office send them?
- How long will the appointment be? What should I expect and who will I meet?
During the consultation(s):
- Have you treated many patients who have the same type of cancer as me?
- Do I need to have any other tests, scans, or imaging done? What will they cost?
- What treatment option(s) do you recommend and why? In which order? Is this the same or different from my oncologist's recommendations?
- Should I speak with any other specialists for their opinion?
To prepare for the consultation:
- How long will I need to be at the CAR T medical center?
- What should I expect and who will I meet? Is there a social worker at this center who can help connect me with support and services?
- Will I have more than one appointment as part of the consultation?
- What should I bring to my appointment(s)? (e.g., insurance card, etc.)
- If needed: Do you have any suggestions for parking, lodging, transportation, food, etc.?
- What else can I do to prepare for the appointment(s)?
- What kinds of tests might I take or need to retake?
- How will we know if CAR T is right for me?
Resources may include referrals to independent third-party nonprofit patient assistance programs. These programs are not operated or controlled by Kite and Kite does not endorse any program or third-party organization. Nonprofit patient assistance program eligibility requirements may vary and are established solely by each independent organization. Kite makes no guarantee with respect to reimbursement or copay assistance for any item or service.
- American Cancer Society
- BMT InfoNet
- CancerCare
- Cancer Support Community
- Family Reach
- HealthTree for Multiple Myeloma
- International Myeloma Foundation
- Leukemia & Lymphoma Society
- Leukemia Research Foundation
- Lymphoma Research Foundation
- Multiple Myeloma Research Foundation
- National Cancer Institute
- National Comprehensive Cancer Network (NCCN) Patient Guides
- Patient Empowerment Network
